We made it to step down today! I went by ICU today to see my son and he wasn't there. I asked the nearest nurse "where's my baby?". She said he was moved to another room and she offered to take me over there. I asked "where is over there?". Se said "step down" and then I squealed and jumped up and down. Dad and I have been waiting for this wonderful news since he had surgery almost two weeks ago. I am by his bedside and nothing, short of showers and potty breaks, is going to make leave. He had a spell when we first got here tonight and it scared the living mess out of me. His heart rate was jumping around and he started to desat (oxygen level in his blood got really low). He got more oxygen and he finally calmed down. I am not sure if he is ready to be here yet, but we'll see how this goes. I feel like I may never be ready to take him home myself. Not that I am questioning my mothering skills, but who has a sick kid and isn't scared to death?!?! He is sleeping now and I have his Dad's song playing for him. As I am trying to write this I keep getting up to every little noise he makes. This post is taking forever for me to write! He has another x-ray scheduled for the morning and they told me I can go with. I have not talked to the doctor to find out how long he will be here or what his home care is going to consist of. He is still on continuous feeds, but they plan to change it to every three hours. Once he has taken well to that schedule then we can try the bottle and nursing :) That's all the updates I got from his nurses today. Hopefully, tomorrow will bring more news from the doctor. Until then we thank everyone for their continued thoughts and prayers! Today was a big day and I know everyone is thanking and praising God!
Much love to all,
Shelley & Blake
No comments:
Post a Comment